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Lliving with Fibromyalgia
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Hi has anyone been diagnosed with Fibromyalgia. For those who don't know what it is , it is a form of M E.It has an array of symptoms which affect you not only physically but mentally as well. You get what they call Brain Fog as your memory is shot to peices ,for example someone rings you you have a chat and Hubby will ask about ten minutes later and i can't remember who it was, silly but confusing.Aches and pains everywhere tender spots, if you get poked or even nudged it can be really painfull .If i were to go shopping and be out most of the day ,the next day i could be in bed all day as exhausted it is not always but the problem is you can't make plans you have to take one day at a time. But i have a wonderfull and supportive Professor Davis that i see at Guys Hospital and he has put me on tablets that they give to people with Parkinsons .they have found out that some people with Fibromyalgia respond to them and it has enabled me to come off %&*$# Painkillers that are Opium based, and can be addictive, to non Opium Painkillers, that is a releif as one day i forgot my prescription and didn't have any for 2 days and i suffered withdrawl like symptoms sweating profusely stomache cramps shaking etc so if anyone has Fibro and is offered tablets for Parkinsons don't be afraid you have got it cause you haven't they just are a great help for mobility of your joints and for the pain. Sorry to go on but when i was diagnosed i knew nothing about it so this might be helpfull to someone out there and i will endevour to answer any questions to see if i can help you with anything.
I don't know much about Fibomyalgia, so I was very interested in your post. I know of M.E and how awful a condition it is. Any health problem which stops a person living a normal life needs to be addressed. Anyhow, hopefully people with experiences related to this medical problem will post soon!
I was diagnosed with Fibromyalgia 5 years ago so can totally understand what you are going through tinypoppy. The best thing I can suggest doing is taking it one day at a time, and don't over exert yourself. You need to know your limits, it sounds easy but I know just how hard it can be. My Rhumatologist told me to remember that just because I feel great one day doesn't mean I should run out and do everything "just incase the feeling didn't last"
I learnt that the hard way...so now I take it as easy as I can..clean the house one room at a time throughout the week not all at once like I used to. Monday I may tidy the bedroom, tuesday the kitchen etc etc.
I hope this little reply helps others out there who have recently been diagnosed with Fibromyalgia.
I learnt that the hard way...so now I take it as easy as I can..clean the house one room at a time throughout the week not all at once like I used to. Monday I may tidy the bedroom, tuesday the kitchen etc etc.
I hope this little reply helps others out there who have recently been diagnosed with Fibromyalgia.
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Hi Tinypoppy,
I've just registered so I could reply to your post so this is my first post on the Handbag forums.
I was diagnosed with fibromyalgia about 7 years ago so I totally understand where you're coming from except I ought to point out that fibromyalgia is NOT a form of ME.
Some fibromyalgia sufferers do suffer from ME or periods of ME, myself included. At times I can get about day to day doing lots of jobs and other days I'm too weak to get off the sofa and walking from room to room is so exhausting and painful that I just sleep and take my max amout of meds until I'm back on my feet.
I'm curious to know where you got your information from though because as I said, fibro is a chronic condition in its own right, as is ME, but the fact that the two often come hand in hand does not mean that one is a form of another. It concerns me that you're offering advice when several things in your post strike me as a little unusual. It might be that you've been given the wrong information.
Also, it would really help if you stated the name of these tablets you say are prescribed for Parkinson's disease.
I've just registered so I could reply to your post so this is my first post on the Handbag forums.
I was diagnosed with fibromyalgia about 7 years ago so I totally understand where you're coming from except I ought to point out that fibromyalgia is NOT a form of ME.
Some fibromyalgia sufferers do suffer from ME or periods of ME, myself included. At times I can get about day to day doing lots of jobs and other days I'm too weak to get off the sofa and walking from room to room is so exhausting and painful that I just sleep and take my max amout of meds until I'm back on my feet.
I'm curious to know where you got your information from though because as I said, fibro is a chronic condition in its own right, as is ME, but the fact that the two often come hand in hand does not mean that one is a form of another. It concerns me that you're offering advice when several things in your post strike me as a little unusual. It might be that you've been given the wrong information.
Also, it would really help if you stated the name of these tablets you say are prescribed for Parkinson's disease.
hi
Quoted:
Hi has anyone been diagnosed with Fibromyalgia. For those who don't know what it is , it is a form of M E.It has an array of symptoms which affect you not only physically but mentally as well. You get what they call Brain Fog as your memory is shot to peices ,for example someone rings you you have a chat and Hubby will ask about ten minutes later and i can't remember who it was, silly but confusing.Aches and pains everywhere tender spots, if you get poked or even nudged it can be really painfull .If i were to go shopping and be out most of the day ,the next day i could be in bed all day as exhausted it is not always but the problem is you can't make plans you have to take one day at a time. But i have a wonderfull and supportive Professor Davis that i see at Guys Hospital and he has put me on tablets that they give to people with Parkinsons .they have found out that some people with Fibromyalgia respond to them and it has enabled me to come off %&*$# Painkillers that are Opium based, and can be addictive, to non Opium Painkillers, that is a releif as one day i forgot my prescription and didn't have any for 2 days and i suffered withdrawl like symptoms sweating profusely stomache cramps shaking etc so if anyone has Fibro and is offered tablets for Parkinsons don't be afraid you have got it cause you haven't they just are a great help for mobility of your joints and for the pain. Sorry to go on but when i was diagnosed i knew nothing about it so this might be helpfull to someone out there and i will endevour to answer any questions to see if i can help you with anything.
Posted by tinypoppy
Posted by tinypoppy
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